So as word gets out about Tyler's cancer, I've received a pretty standard list of questions that follow. Here are a few.
What kind of treatment is Tyler getting? Will he have to have chemo?Tyler is getting
radiation. His type of tumor is very responsive to radiation and there is <0.5% chance of the cancer returning after his radiation treatments are complete. And even if the tumor comes back (which we are NOT expecting to happen), chemotherapy will knock that sucker out once and for all. But for now, we are just expecting that radiation will treat it for good.
What exactly is radiation treatment? How often does he have to get it done?Radiation is where beams of energy are aimed at the affected area, in Tyler's case his lymph nodes in his abdomen. These beams are very precisely aimed at each time so as to make sure that only the specified area is being treated. He receives these treatments five days a week for 4-5 weeks. Currently he is scheduled for 22 days of treatment, with the possibility of extra days at the end to make sure it is all taken care of. The treatment itself takes only about 10 minutes. It takes longer to get him properly positioned and the beams lined up than the radiation is being delivered.
How will this affect Tyler's fertility? Will you be able to have children?Radiation treatment should not affect Tyler's fertility. There is a risk that this might happen, but I compare it to surgery: there is always a risk of death but you don't count on it. While Tyler receives these radiation treatments, his testicle is enclosed in a lead "clamshell" to protect it from any radiation. There will likely be temporary fertility as a result of radiation, but nothing permanent. In any case, we banked sperm to be on the safe side. For $100, we figured we could spare that much to ensure our children's future.
Yes, we will be able to have children, but doctors recommend patients wait a year after radiation treatment to make sure all of the radiation is out of your system before you try to have kids (think radioactive sperm instead of radioactive spider. . . Spiderchild!). No studies have actually been performed to test how soon following radiation a couple should try to conceive, but a year seems like a safe amount of time, so that's what the doctors say.
What are the side effects of radiation? Is Tyler able to do anything while he's receiving it?
Side effects are based on where in the body the radiation is aimed. For Tyler, his abdomen is getting the treatment, so GI upset (read: nausea, constipation, diarrhea) are his symptoms. Patients may experience a degree of fatigue or skin irritation, but Tyler hasn't had any of those problems. His first week on radiation he was extremely nauseated and fatigued for about 6-8 hours following radiation, and then he'd be back to normal. Now he is on a strong anti-emetic (Zofran for my nursing friends :)) which essentially makes him completely normal. He is able to go to work, and actually goes to radiation treatment on his lunch break.
The most annoying side effect would be the gas that Tyler has. Oh. My. Goodness. I swear, we are going through more air freshener these days!
It doesn't matter what I feed him, every night it's a stink storm living with him.
How are the two of you handling all of this? Is there anything I can do?We are really well now. We have answers to our questions and are hopeful about the future. It was rough at the beginning, but Tyler's radiation oncologist (AKA Radonc) is awesome and very reassuring. We feel like we're in good hands with
these specialists and highly recommend them to anyone in need of radiation! Tyler is halfway through his treatments now, so we are on the downhill stretch!